There it was. My new room. This one had windows. Big windows. It had a bathroom. More importantly a bathroom I was now able to use by myself! They had packed me up and moved me out of the ICU. I had been in the basement for almost two weeks. Now I was on the… Continue reading Moving On Up! Regrettably
Tag: pre-transplant
“I’m only thirteen!”
I have this memory that I don’t understand. It was like a dream, but it felt so real. I was on a hospital gurney surrounded by faces I didn’t recognize. It was as if I had just woken up and all these people were buzzing around me. They were rushing so fast it felt like… Continue reading “I’m only thirteen!”
I Remember the Moment My Heart Broke
In the days leading up to my end of the year dance show, I no longer felt like myself. The first thing I noticed was that I couldn’t sleep. I would try to arrange my bed and rearrange my bed. I’d add pillows and then remove them. I was constantly struggling to find a position… Continue reading I Remember the Moment My Heart Broke
The Climb
It was a dark and stormy night!... lol no it wasn’t. Should it have been? I mean it was a sad hard day, but it was beautiful outside. It was sunny and bright. And sad and hard. It was all of those. There were no storms. In fact, over the 5 months, I can’t remember… Continue reading The Climb

